LAST UPDATE OCTOBER 10 23 2004
This section is a list of the web-sites of International Psycho-Oncology Societies and other resources which have the aims of spreading the knowledge and resources about the psychosocial and behavioral aspects of cancer.
International Psycho-Oncology Society (IPOS)
Co-founded by Jimmie C. Holland, MD, in 1984, the International Psycho-Oncology Society (IPOS) was created to foster international multidisciplinary communication about clinical, educational and research issues that relate to the subspecialty of psycho-oncology and two primary psychosocial dimensions of cancer: (i) Response of patients, families and staff to cancer and its treatment at all stages; (ii) Psychological, social and behavioral factors that influence tumor progression and survival. Psycho-Oncology (editors Jimmie C. Holland and Maggie Watson) (http://www3.interscience.wiley.com/cgi-bin/jtoc?ID=5807) is the scientific journal of both the IPOS and the British Psychosocial Oncology Society (BPOS)
Italian Society of Psycho-Oncology
The Society was established in 1985 with the aims of foster the knowledge of the psychological, social and behavioral aspects of cancer, including the factors involved in the onset and course of cancer, and the consequences of cancer for the patient, the family (or caregivers) and the professional. Standards for optimal care and indications for the training in the field are presented. It also publishes twice a year the official journal (Italian Journal of Psycho-Oncology, editors Gabriella Morasso and Luigi Grassi) (http://www.pensiero.it/pensiero/progr/Dettagli.asp?QualeRamo=Psico&IDPubblicazione=305
American Psychosocial Oncology Society (APOS)
Funded after the division of the American Society of Psychosocial and Behaviroal Oncology/AIDS (ASPBOA) and the International Psych-Oncology Society (IPOS), the mission of American Psychosocial Oncology Society is to promote the psychological, social, and physical well being of patients with cancer and their families at all stages of disease and survivorship through clinical care, education, research, and advocacy.
SOS Tumori GENOVA
SOS Tumori provides information and support to cancer patients, their families and the staff. The aims of SOS Tumori are: 1) educational, by reaching the general population through an understandable and non-technical language in order to improve the knowledge about cancer prevention, diagnosis and treatment; 2) informative, by giving indication about clinical services and procedures; 3) psychosocial, by providing psychological support cancer patients and their families
Association of Oncology Social Work (AOSW) http://www.aosw.org/
The site of the Association of Oncology Social Work (AOSW) provides resources for oncology social workers, who are the primary professional discipline providing psychosocial services to patients, families and caregivers in oncology. The is dedicated to increasing awareness about the social, emotional, educational, and spiritual needs of cancer patients and provides continuing education through conferences and publications; promoting clinical research; and fostering networking to address common issues and concerns. The official journal of the AOSW is the Journal of Psychosocial Oncology (editors Grace H. Christ and James R. Zabora) (http://www.haworthpressinc.com/).
Canadian Association of Psychosocial Oncology (CAPO) http://capo.ca/
The site of the Canadian Association of Psychosocial Oncology (CAPO) gives the opportunity to examine the National Psychosocial Oncology Standards for Canada July 9, 1999 (Board Approved September, 1999) are available (http://www.cancercentre.com/capo/finalstandards.cfm).
International Directory of Psycho-Oncology http://www.psycho-oncology.net/
The International directory of psycho-oncology programs has been set up by Marcello Tamburini, PhD, is the Director of the Division of Psychology, Istituto Nazionale Tumori in Milan, Italy Istituto Nazionale Tumori, Milan, Italy., with the scientific support of the IPOS. The directory presents descriptions of a number of psycho-oncology programs at academic and community-based centers, providing information about content, location, and contact information fro each center. The directory is open to the public and is continuing to grow.
World Oncology Network (WON) http://www.worldoncology.net/psycho.htm
World Oncology Network (WON) is a worldwide network of communications among physicians and nurses practicing Hematology/Oncology and related specialties. The section of Psycho-Oncology provides information on several aspects of cancer, full text articles, links with the most important American sites dealing with psych-oncology, consultation-liaison psychiatry, psychosomatic medicine, palliative medicine as well as public and professional resources, practice guidelines and books in the field. Doctors Guide global edition with links to the most significant articles in psychiatry is also present.
The National Comprehensive Cancer Network (NCCN) http://www.nccn.org/
The National Comprehensive Cancer Network (NCCN) is an alliance of the world's leading cancer centers. Established in 1995, the NCCN seeks to support and strengthen the mission of member institutions in order to provide state-of-the-art cancer care to the greatest number of patients in need, to advance the state of the art in cancer prevention, screening, diagnosis and treatment through excellence in basic and clinical research, and to enhance the effectiveness and efficiency of cancer care delivery through the ongoing collection, synthesis and analysis of outcomes data. The NCCN Practice Guidelines in Oncology are the recognized standard reference for appropriate practice in the field of oncology. Alongside many information, the site provides the NCCN/ACS (American Cancer Society) Treatment Guidelines for Patients (in English and Spanish) and the Practice Guidelines 2001, including the guidelines for supportive care, such as Distress Management and Palliative Care.
The National Health and Medical Research Council (NHMRC) http://www.nbcc.org.au/
The National Health and Medical Research Council (NHMRC) - National Breast Cancer Centre (NBCC) has the aim to work in partnership with women, health professionals, cancer organisations and governments, to improve breast cancer outcomes for women. The NBCC provides accurate and up-to-date information about all aspects of breast cancer, with a specific section relative to supportive and psychosocial issues of breast (e.g. Children and breast cancer; Does screening mammography have psychological consequences? Information needs of cancer patients; International first for new psychosocial guidelines; Needs of children of mothers with advanced breast cancer; Psychosocial support from the treatment team)
American Cancer Society (ACS) http://www.cancer.org/
This is a site of the American Cancer Society (ACS) which provides information both for patients, family and friends (i.e. information about cancer, cancer treatment, support groups and services, and special health needs of patients and survivors, including Coping with Physical and Emotional Changes, Support for Survivors and Patients ), for media, researchers, and healthcare professionals, and for health information seekers (i.e. information about cancer prevention, risks, early detection, symptoms, and statistics by year and state).
Cancer Network.Com http://www.cancernetwork.com/
The site provides information of several area in cancer research, including data from Oncology News and other journals in which psychosocial aspects of cancer are discussed. It is possible to examine several articles in the field through a free registration.
One of the largest oncology sites on the net, CancerNet is funded by the US National Cancer Institute (NCI), which is a component of the National Institutes of Health (NIH), one of eight agencies that compose the Public Health Service (PHS) in the Department of Health and Human Services (DHHS). It offers information and publications, both for patients and health professionals, on psychosocial issues in cancer (coping with cancer) (e.g. Pain Control: A Guide for People with Cancer and Their Families; Anxiety Disorder; Post-Traumatic Stress Disorder; Depression; Delirium; Loss, grief, and bereavement).
COPES (Cancer Organizations, Public Education, and Patient Services) is a Programme of the International Union Against Cancer (UICC) which assists UICC members organisations and developing voluntary cancer organisations in promoting cancer care and services to patients everywhere through physical and emotional rehabilitation for better quality of life. COPES includes detailed psychosocial information about breast cancer, within the Reach to Recovery International program (http://cope.uicc.org/breast/)
OncoLink is run by the University of Pennsylvania Cancer Centre. This site was founded in 1994 with the mission to help cancer patients, families, health care professionals and the general public get accurate cancer-related information, including psychosocial issues in cancer (coping with cancer button). A lot of informations, resources, links with other sites and online books (e.g. . Fighting Cancer; Helping People Cope: A Guide For Families Facing Cancer) are available.
The National Hospice and Palliative Care
The National Hospice and Palliative Care Organization (NHPCO) is an association of programs that provide hospice and palliative care. It is designed to increase awareness about hospice services and to champion the rights and issues of terminally ill patients and their families. It offers discussion groups, publications, information on how to find a hospice, and information about the financial aspects of hospice. Some Spanish-language publications are available, and staff can answer calls in Spanish.
The site of CancerBACUP's is one of the largest cancer information service. It provides many resources and practical advice to cancer patients and their families in order to support their needs and to reduce their fear and uncertainty of cancer.
Academy of Psychosomatic Medicine http://www.apm.org/
The Academy of Psychosomatic Medicine (APM) established in 1954 has served as a meeting ground for collaboration and exchange of knowledge and ideas in the arena of psychiatric medicine and consultation-liaison psychiatry. It focuses attention to patients with comorbid medical illness, including cancer, and psychiatric illness and the interaction between them. Information and guidelines about areas connected with psycho-oncology are available in the website (e.g. Position statement: Psychiatric Aspects of Excellent End-of-Life Care; Practice Guidelines for Psychiatric Consultation in the General Medical Setting).
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